In an exclusive interview with The Defender, Gianni Cohen said her mother, Cheryl Cohen, developed Creutzfeldt-Jakob Disease after getting the Pfizer vaccine, and died within three months of her second dose.
By Megan Redshaw | The Defender
Cheryl Cohen, a healthy 64-year-old woman from Florida, died three months after her second dose of Pfizerâs COVID vaccine. According to Cheryâs daughter, Gianni Cohen, her mother suddenly developed Creutzfeldt-Jakob Disease (CJD) â a rare, degenerative and fatal brain disorder â soon after she was vaccinated.
In an exclusive interview with The Defender, Gianni said her mother received the first dose of Pfizer on April 5, and her second dose on April 25.
On May 6, Cheryl experienced her first episode indicating âsomething was neurologically wrong,â Gianni explained. âShe had extreme brain fog and confusion. She couldnât remember where she was driving, and got really scared.â
On May 31, Cheryl called 911 because she was experiencing a severe headache. She was taken to North Shore Medical Center in Homestead, Florida, where she was hospitalized for 10 days.
Gianni said:
âShe got taken to this hospital and I donât know what they considered it, but they kept her for 10 days and released her home. She was in a very very bad state. She said, âHey, I donât know where I am.â
âMy mother had mass confusion and brain fog. She could not do simple things and something wasnât right. We had to have round-the-clock care with friends and families, thinking this was something that needed to be detoxed from her system.â
Gianni, who at the time did not know Cheryl had been vaccinated, said her motherâs condition grew progressively worse.
âShe went from being able to work and do normal everyday activities to being able to do only basic things,â Gianni said. âBefore she was vaccinated, she had her own apartment and worked every day as a sales representative. She cooked, cleaned and was in a great place in life.â
Around June 19, Cheryl experienced another severe headache, which became so bad she felt her head was going to explode, so she went to the emergency room and was admitted to the hospital, her daughter explained.
âA few days later, I visited her in the hospital and I couldnât believe my eyes,â Gianni said. âShe couldnât walk, spoke in broken sentences, wasnât making much sense, had uncontrollable body movements, was trembling and unable to be still.â
The daily regression was rapid. âIt was mind-blowing, confusing and truly heartbreaking. Watching her brain have no control was hard,â Gianni said.
At first doctors couldnât find anything medically wrong with Cheryl other than a slightly elevated white blood cell count, Gianni said. But then MRI imaging of the brain showed evidence of prion disease, prompting doctors to immediately perform a lumbar puncture â which ruled out acute infection, tuberculosis, syphilis, multiple sclerosis and other diseases.
According to the Centers for Disease Control and Prevention (CDC), prion diseases are a family of rare progressive neurodegenerative disorders that affect humans and animals. Prion diseases are usually rapidly progressive and always fatal.
The CDCâs website states:
âThe term âprionsâ refer to abnormal, pathogenic agents that are transmissible and are able to induce abnormal folding of specific normal cellular proteins called prion proteins that are found most abundantly in the brain. The functions of these normal prion proteins are still not completely understood. The abnormal folding of the prion proteins leads to brain damage and the characteristic signs and symptoms of the disease.â
On July 12, a second lumbar puncture came back positive for CJD â a prion disease. Cherylâs tau protein value was 38,979 pg/ml, while the spectrum for CJD positive patients is 0 â 1,149.
Cheryl was hospitalized for a month before she received her diagnosis of CJD. During that time âit was literally like watching something eat her brain alive,â Gianni said. âWhile shaking, she managed to get out the words, âThis is fucking stupid.ââ
âI said, âMom, is this the vaccine?â and she said, âyep.â
Gianni said she was surprised when she found out her mother had been vaccinated, as she comes from a family of un-vaxxers. She believes like many Americans, her mother felt pressured to get vaccinated because of her job and the media pressure.
On July 19, Cheryl was discharged to hospice, where she died on July 22.
âWe didnât know what to do,â Gianni said. âItâs fatal. Thereâs no repairing what was going on. Itâs like fast-acting dementia. It was a really sad thing, so scary, so insane and something [her] doctors hadnât seen before.â
Medical team says onset of CJD could be tied to COVID Vaccine
Gianni said her motherâs medical team said the onset of CJD could be tied to the COVID vaccine. Dr. Andrea Folds, one of the internal medicine physicians from Adventura Hospital who oversaw Cohenâs case, wrote a case report, which will be submitted Sept. 2 to American College of Physicians Journal.
In a written statement to The Defender, Folds said:
âThis case identifies potential adverse events that could occur with the administration of the novel COVID-19 vaccine. Moreover, clinicians need to consider neurodegenerative diseases such as prion disease (e.g. sporadic Creutzfeldt-Jakob disease), autoimmune encephalitis, infection, non-epileptic seizure, toxic-metabolic disorders, etc. in their differential diagnoses when a patient presents with rapidly progressive dementia, particularly in the setting of recent vaccination.
âAlthough there is currently no cure for sporadic Creutzfeldt-Jakob disease (sCJD), early diagnosis is crucial to avoid the unnecessary administration of empiric medications for suspected psychological or neurological disorders.
âFurthermore, tracking adverse events could potentially lead to further characterization and understanding of both the novel COVID-19 messenger ribonucleic nucleic acid (mRNA) vaccine as well as the etiology of sCJD. More importantly, recognizing adverse effects provides individuals with vital information to make a more educated decision regarding their health.â
Prior to Cherylâs diagnosis, Gianni said another doctor had mentioned someone who had come in with similar symptoms, had been vaccinated, developed a rare disease and was also released to hospice.
Gianni filed a report with the CDCâs Vaccine Adverse Events Reporting System (VAERS ID 1535217), sent medical records to the CDC and gave her motherâs brain to the National Prion Disease Pathology Surveillance Center.
Gianni said no autopsy was performed because the cause of death was confirmed as CJD.
Gianni said the Creutzfeldt-Jakob Disease Foundation is also aware of her motherâs case but hasnât updated cases on its website since 2019, making it difficult for others to draw correlations between any arising CJD cases and COVID vaccination, Gianni said.
mRNA vaccines could trigger development of prion diseases, study shows
As The Defender reported July 21, a paper published in February outlined the potential for messenger RNA (mRNA) COVID vaccines to trigger development of prion diseases and related diseases like Alzheimerâs, Parkinsonâs, amyotrophic lateral sclerosis, multiple system atrophy and others.
According to the paperâs author, immunologist J. Bart Classen, one-time National Institutes of Health (NIH) contract scientist and proprietor of Classen Immunotherapies, he based his conclusions on analysis of RNA from the Pfizer injection. He did not have enough information on Moderna.
Classen published a second paper July 25, on vaccines associated Parkinsonâs Disease â a prion disease signal â using the UK Yellow Card adverse events database and data on the AstraZeneca and Pfizer COVID vaccines.
Classen determined both vaccines had the ability to induce prion disease, and the results of the study were consistent with monkey toxicity studies showing infection with SARS-CoV-2 results in Lewy Body formation ââ clumps of abnormal protein particles that accumulate in the brain.
âThe findings suggest that regulatory approval, even under an Emergency Use Authorization, for COVID vaccines was premature and that widespread use should be halted until full long-term safety studies evaluating prion toxicity have been completed,â Classen wrote.
Could COVID vaccines accelerate disease already in progression?
It often takes years for abnormal folding of certain proteins to produce prion disease, but Classen suggests COVID vaccines could be accelerating disease progression in individuals who either already have subclinical prion disease or have mild prion disease that has not been properly diagnosed.
There is also evidence indicating the vaccine spike protein can prompt misfolding of essential RNA/DNA binding proteins, called TDP-43 and FUS, and catalyze a toxic âchain reaction.â
Because the spike protein can so quickly set abnormal protein clumping into motion, Classen speculates this âcould allow fairly rapid detection of prion disease after immunization.â
At the same time, Classen cautioned flawed adverse event reporting systems will likely fail to capture neurodegenerative diseases that take more time to develop. Most vaccine adverse event reports are for acute events, Classen said, whereas few of the adverse events that occur âyears or decades after administration of a pharmaceutical are ever reported.â
Moreover, prion disease symptoms are often non-specific or overlap with other conditions, making diagnosis difficult and underreporting probable.
For these and other reasons, Classen suggests the clinical relevance of his findings âcould be logs in magnitude higherâ than the Parkinsonâs signal he detected through his research.
Childrenâs Health Defense asks anyone who has experienced an adverse reaction, to any vaccine, to file a report following these three steps.
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